So as I mentioned in yesterdays post that I have bought generic medicines, through a buyers club similar to the Dallas Buyers Club film…..
I loved that film, filled me with hope for humanity and righteous indignation at the greed of the greedy ones! But never for a moment did I think i would be living the same story…
I have been infected with Hep C for about 20 odd years and known I was infected for 16 years. Being diagnosed as when I was a student of Herbal Medicine at Middlesex university amazingly I had access to a brilliant library so I informed myself as much as I could about; the liver, pharmacology of the medicines on offer via NHS, herbs to support the liver and antivirals, nutrition, virology and on and on…
Interferon with Ribaviron were the 2 medicines used in the hospital setting and they came with high side effects, I balanced my quality of life and symptoms against the adverse effects that the meds may have on me and chose to treat myself with alternative methods.
I went to see Herbalist and Acupuncturist John Tindall at the Yuan Clinic as he set himself up as a specialist in HepC and HIV and I learned a lot about Traditional Chinese Medicine through that treatment but after a few months decided I wanted to use the herbs growing in my garden over ones from China. So for years have treated myself with herbal remedies, yoga and nutrition.
3 years ago I started displaying symptoms of rashes and increased fatigue so I decided to go back to the consultants that I had kept away from for years, I saw a local hepatologist and over the last 3 years found out that my liver enzymes are raised and that I have certain markers that concern the doctors.
Hep C is broken down into various genotypes 1,2,3,4,5,6, etc and I am genotype 3a apparently according to current research the most aggressive acting in the body with patients having a higher incidence of liver cancers.
In March 2016 new medicines became available in Great Britain, this new medicines are call Direct Acting Anti-virals (DAA) and there are few of them that are prescribed in combinations depending on the patients genotype. These new meds have 95% cure rates and could potentially rid the globe of this insidious virus that kills more people than malaria. Some studies show that over 5% of the globes population know they are infected with the virus. So what is the issue?
Gilead Pharmaceutical who owns the patent are charging ridiculous amounts for the drug, charging the NHS £35 grand per persons treatment, which means here in the UK only a fraction of folks with the virus can get treatment.
A few days ago I got a friend request on FaceBook from someone I was on a Hep C forum with,
David Cowley, he wrote to me offering help with sourcing the medicines. We had a few FB friends in common and he seemed like a nice person, we struck up a dialogue. He explained to me that he had connections in India and could source genuine generic medicine from a pharmaceutical company out there for £1050 and it could be with me in 10-14days.
How strange was this for me? A guys on the internet offering to help me source the meds…
All kinds of thoughts flowed through my mind! But we chatted online and on the phone and I came to realise he could really help me.
I made an appointment with a private Hepatologist in the Royal Free Hospital and learnt that I would be potentially waiting 2-3 years on the NHS so I was advised to get the meds from India asap…..Right now my liver isn't too badly damaged with a low level of fibrosis 6.5 on a Fibroscan which means that the new drugs have a far greater chance of working well.
I sent David the money that afternoon and received a tracking number that night…..
There are thousand of people in the UK infected with the illness that are receiving adequate medical care because of the greed of big pharma who are trying their hardest to stop this supply change themselves.
Doctors in the NHS are refusing to monitor people taking these generic medicines which is disgusting as we are saving the NHS money, thousands and thousands of pounds!
I am going to try and blog daily about my progress with this treatment, I am scared because I haven't taken any type of chemical medicine for decades so I do not know how I shall feel emotionally, physically and spiritually but I have a supportive network of friends and family and also I have created TIME for myself to properly healing with these drugs. I am also unsure about using herbs to support me as symptoms arise, because of the possibilities of impeding the medicine….all things to explore
Now to find out exactly how this medicine is working and the reality of using herbs alongside the treatment……google tastiqueness
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